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A "Anadrol 50" seizure came out of nowhere and has led to a nearly 21/2 year quest for a diagnosis and cure.

"It came out of the blue. Otherwise, he was a normal, healthy, athletic, intelligent, happy, caring, kind, energetic, red headed little boy," said Candon's mother, Colby Westervelt, a physical education teacher for Candor schools. "It was very shocking, very tough to swallow. Things progressively got worse."

It's been a journey few "Anadrol 50" 9 year olds experience: poking, prodding and testing at top medical centers; seizures as frequent as 90 a month, a few lasting 50 minutes; and four brain surgeries. The Lockwood family went to leading regional and national medical centers in Syracuse, Rochester, New York City, Birmingham, Ala., Rochester, Minn., and Baltimore.

Confirmation of a suspicion from two years earlier came in November 2012 from the Mayo Clinic in Rochester, Minn.: The fourth grader has a rare neurological disease with no known cause, Rasmussen's encephalitis, which causes one side of the brain to become inflamed and deteriorate.

The only known cure is quite radical: half of Candon's brain, the affected right side, will be removed April 25 at Johns Hopkins Hospital in Baltimore, a procedure known as a hemispherectomy.

"We don't know what it is. It's thrown in the bucket of an autoimmune disorder," said Dr. George Jallo, of the Johns Hopkins Children's Medical Center, who has operated twice on Candon and will do the April 25 surgery.

"We don't know how people get it, or the cause, whether it's a virus or congenital. We also don't know why Buy Cheap Jintropin Online it affects one side of brains and why it's Methandienone Msds progressive," Jallo Gensci Jintropin said. "Really, the only effective treatment is to cut out the bad part of the brain."

It's estimated only 200 cases have been diagnosed in the United States and Canada since 1958, the Hemispherectomy Foundation said. It generally strikes between ages 14 months and 14 years, according to Johns Hopkins.

Two year decision"The thought of Rasmussen's and the thought of removing half his brain was thrown at us two years ago," Colby Westervelt said. "We went through the grieving process. Even still, it took us over a month to accept that this was his diagnosis. It took another couple weeks to decide if the (brain operation) was the right thing for him."

She said there are numerous reasons to do the surgery: "The disease will never go away. It will only continue to get worse. The seizures will increase in frequency. The brain continues to shrink."

The good news: with intensive therapy, the left side of Candon's brain will take over for the right side, allowing him to lead a fairly normal life, Jallo said.

"People need to realize that you can lead a normal and a better life after actually going through something like this," Colby Westervelt said.

Support at schoolThe Waverly school district is rallying around Candon, who attends Elm Street Elementary School in Waverly. A fundraiser spearheaded by school nurse Molly Welch features the sale of T shirts and sweatshirts through Wednesday.

"The idea is for everybody to wear them on the day of Candon's operation," Welch said. Proceeds will help pay the family's travel expenses to Baltimore and benefit The Children's House at Johns Hopkins, where the family will stay while Candon undergoes post operative therapy.

Candon designed the shirts, and Waverly art teacher Nate Culver did the drawings. They are red, Candon's favorite color, show the top of a head with half a brain (the left side) and say "Left strong" and April 25, 2013, his operation date. Satterlee and Sons, a fuel delivery company; his 12 year old sister Elexes, a Waverly Middle School sixth grader; and the family dog.

"She's been with him every step of the way," Colby Westervelt said of Elexes.

So have many of the 340 students at Elm Street Elementary. From the bus ride to the classroom, Candon must always have an aide with him who is trained to administer medication within minutes of a seizure, Welch said. His "Anabola Steroider Norge Lagligt" brain is constantly undergoing seizing activity, and some of his 50 seizures a month occur at school, Masteron V Candon's mother said.

"Technically, I'm having one right now in my brain but they are not showing," Candon said matter of factly to this reporter at his school this week. And when they're stronger? "My left leg pulls up like this and it kicks on the ground. My right arm goes like this," he demonstrates. "I scream. (It hurts), and sometimes I need oxygen."

Principal Anne Bernard said the school has a plan in place for Candon's seizures. "A spare room is often available. The class will just relocate there temporarily. Everybody helps (from teachers to playground monitors). We have all worked together to keep him safe . Everybody here cares about that child."

Candon involvedColby Westervelt said Candon rarely complains, and has been kept fully informed and is involved in decision making.

"That has helped in his hope and trust in us and in the doctors," she said.

For his operation, he'll be in the hospital for about 10 days, then go into intensive occupational, physical and speech therapy for weeks to months in Baltimore. Then will come up to 10 hours per week of outpatient therapy back home, Candon's mother said.

Jallo said Johns Hopkins does most of these operations in the United States, but still only six to 10 a year. To be chosen, children must show commitment to a long and difficult recovery, which involves a few weeks of not moving one side of the body.

"You need the dedication, commitment and motivation. He has it," Jallo said of Candon.

Jallo said Candon will lose hand and finger grasping control on his left side, affecting things such as buttoning a shirt, but from afar, most people won't notice anything.

"He knows it will take some time to regain movement," Colby Westervelt said of her son. "With his intense seizures, he already has the inability to move his arm or legs for up to 30 minutes . His left hand will never regain fine motor skills. He will never be able Steroids Injection Gone Wrong to open a water bottle top, but he'll be able to hold the water bottle."